Understanding Dementia

Why We Need to Talk About Dementia

Dementia affects nearly one million people in the UK. It has a profound impact not just on those living with the condition, but also on their families and communities. In this open and honest discussion, Jonathan, Kingsway Care's dementia expert shares insights and advice based on his daily experience supporting our clients with dementia and training our CareGivers.

The aim? To create greater understanding, reduce frustration, and offer realistic, compassionate ways to navigate the complexities of dementia care. Watch the video below or carry on reading for a summary of our expert's advice.

Recognising the Early Signs of Dementia

Families may first notice short-term memory loss, but this is often just the beginning. As dementia progresses, people may experience:

• Increased anxiety
• Hallucinations
• Loss of spatial awareness
• Breakdowns in social skills and inhibitions

This can sometimes manifest as inappropriate behaviour or language—something that can be deeply unsettling for loved ones.

Dementia Denial

One of the biggest hurdles early on is denial. Both the person with dementia and their family members may struggle to accept the diagnosis. Jonathan notes how common it is for families to say things like: “I already told you this!” or “Why can’t you remember what I wrote down?” These moments can be frustrating, but it’s important to remember: it’s not their fault. They are struggling to remember.

This denial is often mutual. Families can find it hard to acknowledge what’s happening, and those living with dementia may be frightened or confused about the changes they’re experiencing—especially in the case of early-onset dementia.

Seek Support Early On

Jonathan’s advice to those just starting this journey is clear: gather as much information as possible. Connect with local resources such as community dementia centres or day centres. Most importantly, speak with people who have direct experience.

And when it comes to introducing home care, start small. Jonathan often recommends beginning with a simple, low-pressure companionship visit, such as a four-hour check-in each week. This gentle approach helps to build trust and establish a relationship before progressing to more personal forms of care.

Because, as he puts it:

Having someone you don’t know in your home is hard enough. But for someone with dementia, it can spark all kinds of anxiety.

Building rapport and continuity of care is essential. Once trust is established, care can be gradually adapted to meet changing needs.

Training, Empathy, and the Power of Perspective

Kingsway Care places a strong emphasis on dementia-specific training for our CareGivers, and Jonathan leads much of this himself. A key message he shares is the importance of empathy:

Try to put yourself in the shoes of someone who has dementia. If you can do that, you’ll build a far better rapport.

He encourages CareGivers to really think about the world from their client’s perspective and reminds them that support is always available for both carers and client's families. Kingsway Care recognise how vital the families role is in the overall care circle which is why we provide free training and advice.

Understanding Behavioural Changes

Behavioural changes in dementia are varied and can include:

• Aggression or seeming lack of empathy
• Changes in eating or sleeping habits
• Language difficulties (e.g., using the wrong word, or forgetting a word)
• Misinterpretation of surroundings and sounds

These changes can be upsetting. However, Kingsway Care focuses on non-confrontational approaches that prioritise reassurance over correction. Jonathan shares how, rather than pointing out a mistake, he uses humour and creativity to defuse tense moments.

The Importance of Music, Humour, and Connection

When caring for someone with dementia, humour and music can be powerful tools. Jonathan keeps a playlist of each client’s favourite songs and uses music as a way to connect and calm. It’s a small act that makes a big difference.

In his training, Jonathan often quotes American dementia expert Teepa Snow, who encourages carers to take a moment and step away from frustration:

Take time out. Look at the bigger picture. Seek help. Don’t be too judgemental.

A Final Word: You’re Not Alone

Dementia care is challenging but it’s not something you have to face alone. With the right support, early planning, and a compassionate, step-by-step approach, families and individuals living with dementia can still lead rich and connected lives.

Dementia Care

Free Dementia Support SessionsAlzheimer's Society Brighton & Hove

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